{"id":7829,"date":"2013-04-22T10:58:07","date_gmt":"2013-04-22T08:58:07","guid":{"rendered":"https:\/\/popelky.cz\/pokus_sablona\/?p=7829"},"modified":"2018-11-29T10:58:37","modified_gmt":"2018-11-29T09:58:37","slug":"s-kataplexii-se-bez-pratel-neobejdu-chybi-mi-partner","status":"publish","type":"post","link":"https:\/\/popelky.cz\/verze7-0\/telo\/s-kataplexii-se-bez-pratel-neobejdu-chybi-mi-partner.html","title":{"rendered":"S kataplexi\u00ed se bez p\u0159\u00e1tel neobejdu. Chyb\u00ed mi partner…"},"content":{"rendered":"

Views: 22<\/p>

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Vypad\u00e1 to jako n\u00e1ramn\u00e1 ta\u0161ka\u0159ice, kdy\u017e se d\u00edv\u00e1me na problematiku t\u00e9to nemoci, zpracovanou autory filmov\u00fdch komedi\u00ed. Ve skute\u010dnosti to ale takov\u00fd humor nen\u00ed. M\u00e1lokdo z n\u00e1s si um\u00ed p\u0159edstavit, \u017ee by se nap\u0159\u00edklad b\u011bhem nakupov\u00e1n\u00ed v supermarketu najednou sk\u00e1cel mezi marmel\u00e1dy a p\u016fl hodinky se zde nedobrovoln\u011b povaloval\u2026<\/strong><\/p>\n<\/div>\n

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M\u00e1 hodn\u011b r\u016fzn\u00fdch podob a nuanc\u00ed, v z\u00e1sad\u011b je to ale onemocn\u011bn\u00ed skute\u010dn\u011b v\u00e1\u017en\u00e9.<\/strong><\/p>\n

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Prvotn\u00edm znakem je \u010dasto celkov\u00e1 slabost, podlomen\u00ed nohou a p\u00e1d, n\u011bkdy bez poruchy v\u011bdom\u00ed, jindy v\u010detn\u011b. To kdy\u017e je Kataplexie sou\u010d\u00e1st\u00ed narkolepsie, co\u017e se st\u00e1v\u00e1 \u010dasto.<\/p>\n

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A co m\u011b p\u0159ivedlo pr\u00e1v\u011b k tomuto dne\u0161n\u00edmu t\u00e9matu a \u010dl\u00e1nku?<\/strong><\/p>\n

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Ano, je to zku\u0161enost.<\/p>\n

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Na\u0161t\u011bst\u00ed ne vlastn\u00ed, i kdy\u017e po t\u0159et\u00ed hodin\u011b rann\u00ed, kdy\u017e je\u0161t\u011b n\u011bkdy pracuji, pad\u00e1m n\u00e1sledn\u011b do postele jako klasick\u00fd narkoleptik a kataplexik.<\/p>\n

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Za\u017eila jsem ov\u0161em pr\u016fb\u011bh jednoho ze z\u00e1chvat\u016f tohoto neurologick\u00e9ho onemocn\u011bn\u00ed na vlastn\u00ed o\u010di a nen\u00ed to nic p\u0159\u00edjemn\u00e9ho.<\/strong><\/p>\n

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Kdyby s pan\u00ed nep\u0159i\u0161la jej\u00ed kamar\u00e1dka, kter\u00e1 m\u011b upozornila dop\u0159edu, je\u0161t\u011b po telefonu, ne\u017e dorazily, m\u011bla bych mnohem v\u011bt\u0161\u00ed \u0161ok.<\/p>\n

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Vypad\u00e1 to, jako kdy\u017e v\u00e1m takov\u00fd \u010dlov\u011bk, prost\u011b p\u0159ed o\u010dima n\u00e1hle um\u0159el!<\/strong><\/p>\n

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V\u0161echno, co m\u011bla v ruce, j\u00ed vypadlo a ona se sesunula jako by byla hadrov\u00e1.<\/p>\n

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Je\u0161t\u011b se hlavou uhodila o st\u016fl, \u010demu\u017e jej\u00ed kamar\u00e1dka nestihla zabr\u00e1nit. Jakkoli jsem byla upozorn\u011bna dop\u0159edu, \u017ee pan\u00ed trp\u00ed nemoc\u00ed, p\u0159i kter\u00e9 vypad\u00e1, jakoby usnula, ale nesp\u00ed, p\u0159esto jsem se lekla.<\/p>\n

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Spou\u0161t\u011b\u010dem z\u00e1chvatu je emoce a pan\u00ed se to p\u0159ihodilo, kdy\u017e se sm\u00e1la.<\/strong><\/p>\n

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\u010clov\u011bk se skoro styd\u00ed, \u017ee \u0159ekl n\u011bco vtipn\u00e9ho. Stejn\u011b dob\u0159e se to ale m\u016f\u017ee st\u00e1t, p\u0159i jak\u00e9koli jin\u00e9 v\u011bt\u0161\u00ed emoci. V p\u0159\u00edpad\u011b t\u00e9to pan\u00ed i tehdy, kdy\u017e j\u00ed t\u0159eba hodn\u011b chutn\u00e1 j\u00eddlo.<\/p>\n

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Jakkoli je to ve filmu \u00fasm\u011bvn\u00e9, v re\u00e1ln\u00e9m \u017eivot\u011b to skute\u010dn\u011b nen\u00ed k popuk\u00e1n\u00ed.<\/strong><\/p>\n

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\"9439MGR.jpg\"<\/strong><\/p>\n

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Prvn\u00ed z\u00e1chvat jsem m\u011bla v patn\u00e1cti letech, a moc si toho nepamatuji. V\u00edte, \u010dasem se \u010dlov\u011bk nau\u010d\u00ed \u017e\u00edt se v\u0161\u00edm, ale v osmn\u00e1cti jsem se je\u0161t\u011b cht\u011bla zab\u00edt. Medikace z\u00e1chvaty zm\u00edrn\u00ed, ale nel\u00e9\u010d\u00ed. Nejhor\u0161\u00ed je zvyknout si na to, \u017ee \u010dlov\u011bk nen\u00ed schopen p\u0159i z\u00e1chvatu mluvit a zavolat pomoc, proto\u017ee t\u0159eba u m\u011b se stane, \u017ee mi na chv\u00edli ochrnou i mimick\u00e9 svaly. Trv\u00e1 to dlouho, ne\u017e p\u0159estanete m\u00edt strach.<\/em><\/p>\n

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Jako d\u00edt\u011b jsem byla jenom uzav\u0159en\u011bj\u0161\u00ed a m\u00e1lomluvn\u00e1 a \u010dasto jsem spala. Vlastn\u011b na m\u011b do prvn\u00edho z\u00e1chvatu nic nebylo, jenom jsem p\u016fsobila, a tak\u00e9 mi to \u010dasto \u0159\u00edkali, \u017ee jsem l\u00edn\u00e1.<\/em><\/p>\n

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Pom\u011brn\u011b dlouho jsem se zbavovala pocit\u016f \u00fazkosti, osamocen\u00ed a nepochopen\u00ed. Nemohu \u0159\u00edci, \u017ee bych se toho \u00fapln\u011b zbavila, ale m\u00e1m asi v\u00edc \u0161t\u011bst\u00ed, ne\u017e jin\u00ed, \u017ee m\u00e1m alespo\u0148 p\u0159\u00e1tele, a \u017ee jsem \u010d\u00e1ste\u010dn\u011b na\u0161la pochopen\u00ed. Ono, toti\u017e bez doprovodu, nemohu v\u016fbec nikam j\u00edt.<\/em><\/p>\n

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 Moc bych si p\u0159\u00e1la i p\u0159\u00edtele, \u010dlov\u011bka, kter\u00fd by m\u011b m\u011bl r\u00e1d. No a kter\u00e9mu by nevadilo, \u017ee mu n\u011bkdy u ve\u010de\u0159e, ne\u0159ku-li u jin\u00fdch \u010dinnost\u00ed takhle na chv\u00edli odpadnu.<\/em><\/p>\n

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Vypad\u00e1 to, \u017ee sp\u00edm, ale j\u00e1 nesp\u00edm.<\/em><\/p>\n

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V\u0161echno v\u00edm, co se d\u011bje, sly\u0161\u00edm a podobn\u011b, jenom se nemohu h\u00fdbat ani mluvit, <\/em>vypr\u00e1v\u00ed s \u00fasm\u011bvem.<\/p>\n

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Alexu jsem poznala v l\u00e1zn\u00edch ve Velk\u00fdch Losin\u00e1ch, kde jsem p\u0159ed t\u0159emi lety byla zase s m\u00fdm probl\u00e9mem a to je prod\u011blan\u00e1 meningoencefalitida.<\/em><\/p>\n

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Hodn\u011bj\u0161\u00ed a dobrotiv\u011bj\u0161\u00ed bytost jsem nepoznala.<\/em><\/p>\n

Asi jsme si byly n\u011bjak souzeny a up\u0159\u00edmn\u011b mi jej\u00ed v\u00fdpadky u\u017e nejen nevad\u00ed, ale \u010dlov\u011bk si tak zvykne, \u017ee je to vlastn\u011b rutina. <\/em><\/p>\n

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V\u011bt\u0161inou to na n\u00ed i pozn\u00e1m, proto\u017ee chv\u00edli p\u0159ed t\u00edm m\u00e1 takov\u00fd zaseknut\u00fd v\u00fdraz. J\u00e1 se p\u0159iprav\u00edm a pak Alexu chyt\u00edm. Nato j\u00ed v klidu bu\u010fto polo\u017e\u00edm, nebo udr\u017e\u00edm a chv\u00edli po\u010dk\u00e1m. <\/em><\/p>\n

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Probere se prakticky do \u00fapln\u00e9ho procitnut\u00ed a n\u011bkdy je schopna pokra\u010dovat v tom co za\u010dala<\/em>, sd\u011bluje jej\u00ed kamar\u00e1dka Eva.<\/p>\n

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Na to j\u00ed Alexa doplnila, \u017ee ale nesm\u00ed m\u00edt zrovna v ruce zmrzlinu a nesm\u00ed b\u00fdt horko, jako loni na Vinohradech.<\/p>\n

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Ob\u011b se zasm\u00e1ly.<\/p>\n

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A j\u00e1 se na n\u011b na ob\u011b d\u00edvala s hlubok\u00fdm obdivem, vnit\u0159n\u00edm uspokojen\u00edm a s jakousi \u00factou.<\/strong><\/p>\n

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Na Alexu proto, \u017ee v z\u00e1sad\u011b pom\u011brn\u011b s gr\u00e1ci\u00ed i optimismem nos\u00ed takov\u00fd celo\u017eivotn\u00ed k\u0159\u00ed\u017e.<\/p>\n

Mimochodem, je to hezk\u00e1, drobn\u00e1 tmavovl\u00e1ska velk\u00fdma hn\u011bd\u00fdma o\u010dima, kter\u00e1 nem\u016f\u017ee m\u00edt o moc v\u00edc kilo ne\u017e j\u00e1.<\/p>\n

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A na pan\u00ed Evu jako na \u010dlov\u011bka, ke kter\u00e9mu jsem pojala a\u017e svatou \u00factu, nebo n\u011bjak\u00fd druh vd\u011bku za druh\u00e9ho\u2026vlastn\u011b ty pocity neum\u00edm moc popsat.<\/p>\n

Ona je naopak po\u0159\u00e1dn\u00fd kus \u017eeny, kdy\u017e \u0159\u00edkala, \u017ee Alexu ob\u010das i udr\u017e\u00ed, celkem to um\u00edm pochopit.<\/p>\n

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Mysl\u00edm, \u017ee by byla schopna ji vz\u00edt n\u00e1ru\u010de a jako neuv\u011b\u0159iteln\u011b dobr\u00fd p\u0159\u00edtel, ji prost\u011b odn\u00e9st, kam by bylo pot\u0159eba.<\/p>\n

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Vlastn\u011b je to takov\u00fd And\u011bl str\u00e1\u017en\u00fd.<\/strong><\/p>\n

A na tom trv\u00e1m, i kdy\u017e se Eva tomuhle m\u00e9mu ozna\u010den\u00ed zasm\u00e1la.<\/p>\n

Na rozd\u00edl od Alexy, kter\u00e1 s v\u00e1\u017enou tv\u00e1\u0159\u00ed souhlasila.<\/p>\n

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P\u0159esnou p\u0159\u00ed\u010dinu t\u00e9to nemoci dosud l\u00e9ka\u0159i po\u0159\u00e1dn\u011b neznaj\u00ed.<\/strong><\/p>\n

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Kataplexie se v\u011bt\u0161inou objev\u00ed bez jak\u00e9hokoliv d\u016fvodu.<\/p>\n

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Do\u010detla jsem se, \u017ee by vin\u00edkem mohl b\u00fdt genetick\u00fd faktor, ozna\u010dovan\u00fd jako HLA komplex, kter\u00fd se vyskytuje kdesi na \u0161est\u00e9m chromozomu.<\/p>\n

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Ten ale p\u0159edstavuje jen dispozici k tomuto onemocn\u011bn\u00ed, kter\u00e9 se nemus\u00ed objevit.<\/p>\n

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V n\u011bkter\u00fdch p\u0159\u00edpadech m\u016f\u017ee nemoc vzniknout i n\u00e1sledkem mechanick\u00e9ho poran\u011bn\u00ed mozku, vzniku n\u00e1doru, vlivem z\u00e1n\u011btu a podobn\u011b.<\/p>\n

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Jak Alexa k nemoci p\u0159i\u0161la, nev\u00ed.<\/p>\n

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L\u00e9ka\u0159i nejsou schopni kataplexii ani narkolepsii zcela vyl\u00e9\u010dit, ale je v jejich mo\u017enostech ji zm\u00edrnit v\u011bt\u0161inou r\u016fzn\u00fdmi psychostimulanty a tak\u00e9 antidepresivy.<\/p>\n

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Alexa nikdy nem\u016f\u017ee vlastnit \u0159idi\u010dsk\u00fd pr\u016fkaz.<\/em><\/strong><\/p>\n

P\u0159i z\u00e1chvatu, pokud by byla sama, se m\u016f\u017ee zranit.<\/em><\/strong><\/p>\n

Jej\u00ed \u0161ance naj\u00edt partnera jsou pochopiteln\u011b omezeny.<\/em><\/strong><\/p>\n

Je v pln\u00e9m invalidn\u00edho d\u016fchodu.<\/em><\/strong><\/p>\n

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P\u0159esto si mysl\u00edm, \u017ee ve sv\u00fdch 31 letech i p\u0159es tento handicap, d\u00edky tomu, \u017ee je moc hezk\u00e1 a nesm\u00edrn\u011b mil\u00e1, rozhodn\u011b um\u00ed upoutat.<\/p>\n

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\u201eNo, prost\u011b by se m\u016fj p\u0159\u00edpadn\u00fd mu\u017e musel sm\u00ed\u0159it s hodn\u011b v\u011bcmi. Nap\u0159\u00edklad, \u017ee bych mu mohla p\u0159ipravovat jen studenou kuchyni. Proto\u017ee vym\u00e1chat si obli\u010dej v sal\u00e1tu, je trochu n\u011bco jin\u00e9ho, ne\u017e ve va\u0159\u00edc\u00ed vod\u011b na knedl\u00edky<\/em>\u201c, um\u00edv\u00e1 se Alexa.<\/p>\n

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A j\u00e1 bych j\u00ed, i podobn\u011b posti\u017een\u00fdm lidem r\u00e1da pop\u0159\u00e1la hodn\u011b s\u00edly, optimismu a hlavn\u011b takov\u00e9 b\u00e1je\u010dn\u00e9 p\u0159\u00e1tele, And\u011bly, jak\u00e9ho m\u00e1 Alexa v osob\u011b pan\u00ed Evy.<\/strong><\/p>\n

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\"9440NmE.jpg\"<\/strong><\/p>\n

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P\u0159\u00edjemn\u00fd den v\u0161em!<\/strong><\/p>\n

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Michaela Kudl\u00e1\u010dkov\u00e1<\/em><\/p>\n

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[sexy_author_bio]<\/p>\n

\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Views: 22 Vypad\u00e1 to jako n\u00e1ramn\u00e1 ta\u0161ka\u0159ice, kdy\u017e se d\u00edv\u00e1me na problematiku t\u00e9to nemoci, zpracovanou autory filmov\u00fdch komedi\u00ed. Ve skute\u010dnosti to ale takov\u00fd humor nen\u00ed. M\u00e1lokdo z n\u00e1s si um\u00ed p\u0159edstavit, \u017ee by se nap\u0159\u00edklad b\u011bhem nakupov\u00e1n\u00ed v supermarketu najednou sk\u00e1cel mezi marmel\u00e1dy a p\u016fl hodinky se zde nedobrovoln\u011b povaloval\u2026   M\u00e1 hodn\u011b r\u016fzn\u00fdch podob a nuanc\u00ed, […]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[25],"tags":[],"class_list":["post-7829","post","type-post","status-publish","format-standard","hentry","category-telo"],"aioseo_notices":[],"aioseo_head":"\n\t\t\n\t\n\t\n\t\n\t\n\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t