{"id":6451,"date":"2012-01-23T10:48:15","date_gmt":"2012-01-23T09:48:15","guid":{"rendered":"https:\/\/popelky.cz\/pokus_sablona\/?p=6451"},"modified":"2018-10-29T10:48:41","modified_gmt":"2018-10-29T09:48:41","slug":"dokument-zachrante-edwardse-vas-dojme-k-slzam","status":"publish","type":"post","link":"https:\/\/popelky.cz\/verze7-0\/rodina-a-drobotina\/dokument-zachrante-edwardse-vas-dojme-k-slzam.html","title":{"rendered":"Dokument Zachra\u0148te Edwardse v\u00e1s dojme k slz\u00e1m"},"content":{"rendered":"<p>Views: 116<\/p><div class=\"article_text\">\n<p><strong>Mlad\u00fd p\u00e1r se t\u011b\u0161\u00ed na miminko. Ale dozv\u00eddaj\u00ed se, \u017ee d\u00edt\u011b trp\u00ed chromozon\u00e1ln\u00ed odchylkou \u2013 <em>Edwards\u016fv syndrom<\/em>. Tyto d\u011bti jen vz\u00e1cn\u011b po narozen\u00ed p\u0159e\u017e\u00edvaj\u00ed. Maminka \u0160\u00e1rka se rozhoduje, \u017ee si d\u00edt\u011b ponech\u00e1. Strastipln\u00e1 cesta k&nbsp;z\u00e1zraku? Ur\u010dit\u011b. Ale v&nbsp;dokumentu uvid\u00edte i t\u00edhu, kterou sebou tento z\u00e1zrak nese. Neskute\u010dnou t\u00edhu.<\/strong><\/p>\n<\/div>\n<div class=\"article_text\">\n<div><em><strong>Edwards\u016fv syndrom <\/strong><\/em>\u2013 <em>druh\u00e1 nej\u010dast\u011bj\u0161\u00ed chromozon\u00e1ln\u00ed porucha po Downov\u011b syndromu. D\u00edt\u011b m\u00e1 dva chromozony 18, spr\u00e1vn\u00fd po\u010det je v\u0161ak t\u0159i. P\u0159ibli\u017en\u011b polovina plod\u016f zem\u0159e je\u0161t\u011b za nitrod\u011blo\u017en\u00edho v\u00fdvoje.<\/em><\/div>\n<div><em>Narozen\u00e9 d\u011bti se rod\u00ed s&nbsp;n\u00edzkou porodn\u00ed v\u00e1hou, s&nbsp;roz\u0161t\u011bpov\u00fdmi vadami, v\u00e1\u017en\u00fdmi vadami srdce, maj\u00ed abnorm\u00e1ln\u011b tvarovanou hlavu, nos, u\u0161i, malou \u010delist i \u00fasta a maj\u00ed t\u011b\u017ekosti s&nbsp;p\u0159\u00edjmem potravy i samotn\u00fdm d\u00fdch\u00e1n\u00edm.<\/em><\/div>\n<div><em>Polovina narozen\u00fdch d\u011bt\u00ed um\u00edr\u00e1 do dvou m\u011bs\u00edc\u016f po porodu na komplikace vypl\u00fdvaj\u00edc\u00ed z&nbsp;jejich zdravotn\u00edho stavu. Pouh\u00fdch 5-10% d\u011bt\u00ed p\u0159e\u017e\u00edv\u00e1 sv\u00e9 prvn\u00ed narozeniny.<\/em><\/div>\n<div><\/div>\n<div><strong>Juli\u00e1nka, kter\u00e1 se s touto vadou narodila,&nbsp;oslavila p\u0159ed m\u011bs\u00edcem sv\u00e9 4. narozeniny!<\/strong><\/div>\n<div><\/div>\n<div>Maminka \u0160\u00e1rka je zdravotn\u00ed sestra, tat\u00ednek Marcel v&nbsp;dob\u011b prvn\u00edho t\u011bhotenstv\u00ed sv\u00e9 \u017eeny archiv\u00e1\u0159. Mlad\u00fd, \u0161\u0165astn\u00fd, snad i trochu naivn\u00ed p\u00e1r. V\u011b\u0159\u00edc\u00ed v&nbsp;l\u00e1sku, Boha a budouc\u00ed rodinu.<\/div>\n<div>Osud v\u0161ak zasahuje velmi krutou ranou a v&nbsp;srdc\u00edch i hlav\u00e1ch obou se rod\u00ed rozhodnut\u00ed d\u00edt\u011b se nechat. \u010ci sp\u00ed\u0161e nikdy ani jinak nep\u0159em\u00fd\u0161leli\u2026<\/div>\n<div><\/div>\n<div><strong><em>Obdiv maj\u00ed rodi\u010de mlad\u00fdch lid\u00ed, kte\u0159\u00ed zde tak\u00e9 vystoupili a vid\u011bli celou v\u011bc zase z&nbsp;jin\u00e9ho \u00fahlu pohledu. Rodi\u010de \u0160\u00e1rky stoj\u00ed za jej\u00edm rozhodnut\u00edm, Marcelovy rodi\u010de v\u0161ak maj\u00ed n\u00e1zor opa\u010dn\u00fd.<\/em><\/strong><\/div>\n<div><\/div>\n<div><strong>Ti dva v\u0161ak maj\u00ed obrovskou s\u00edlu, podporovanou v\u00edrou v&nbsp;Boha a z\u00e1zrak. <\/strong><\/div>\n<div><strong>Ten se stal<\/strong>. V&nbsp;dob\u011b, kdy s&nbsp;nimi proch\u00e1z\u00edme t\u011bhotenstv\u00edm se i div\u00e1k s\u00e1m st\u00e1v\u00e1 sou\u010d\u00e1st\u00ed t\u011bch m\u011bs\u00edc\u016f \u010dek\u00e1n\u00ed nejen na pohlav\u00ed miminka, ale i na to, jestli v\u016fbec p\u0159e\u017eije. V\u0161e vypad\u00e1 dob\u0159e, \u0160\u00e1rka dokonce p\u0159en\u00e1\u0161\u00ed a porod je vyvol\u00e1van\u00fd.<\/div>\n<div>To ji napl\u0148uje nad\u011bj\u00ed, \u017ee t\u0159eba se testy, l\u00e9ka\u0159i a ultrazvuky mohly m\u00fdlit.<\/div>\n<div><em>D\u011bti s Edwardsov\u00fdm syndromem se v\u011bt\u0161inou rod\u00ed p\u0159ed\u010dasn\u011b.<\/em><\/div>\n<div><\/div>\n<div><strong>V\u00e1no\u010dn\u00ed z\u00e1zrak pln\u00fd nehmatateln\u00fdch emoc\u00ed<\/strong><\/div>\n<div>V\u0161e je o to emotivn\u011bj\u0161\u00ed, \u017ee narozen\u00ed d\u00edt\u011bte se odehr\u00e1v\u00e1 20. prosince, v&nbsp;p\u0159edv\u00e1no\u010dn\u00ed \u010das. Mamink\u00e1m asi nemus\u00edm vypr\u00e1v\u011bt, jak moc o\u017eivuj\u00ed vlastn\u00ed vzpom\u00ednky z\u00e1b\u011bry z&nbsp;porodn\u00edho s\u00e1lu, jak moc lze splynout s&nbsp;d\u011bn\u00edm.<\/div>\n<div><em><strong>Jak tyhle okam\u017eiky filmu um\u00ed v du\u0161i ka\u017ed\u00e9 \u017eeny vyt\u00e1hnout ty nejnitern\u011bj\u0161\u00ed, nehmatateln\u00e9 emoce.<\/strong><\/em><\/div>\n<div>Svl\u00e9k\u00e1n\u00ed v&nbsp;\u0161atn\u011b, nad\u011bje, l\u00e1ska, p\u0159\u00edtomnost zn\u00e1m\u00e9 porodn\u00ed asistentky, kter\u00e1 n\u011b\u017en\u011b pohlad\u00ed \u0160\u00e1rce b\u0159icho.<\/div>\n<div>Ta nejistota \u2013 co se narod\u00ed, jak bude vypadat? Bolesti, kter\u00e9 berou dech, kter\u00e9 s\u00edl\u00ed a budouc\u00ed maminka je nucena se s&nbsp;nimi poprat.<\/div>\n<div>V&nbsp;z\u00e1v\u011bru, kdy se narod\u00ed Juli\u00e1nka, velmi dob\u0159e pochop\u00edte Marcelova slova:<\/div>\n<div><strong>\u201eV\u00ed, co \u010deho jde a nese to state\u010dn\u011b a je oporou pro m\u011b.\u201c<\/strong><\/div>\n<div>Marcel v&nbsp;t\u011b\u017ek\u00fdch chv\u00edl\u00edch psal SMSky zn\u00e1m\u00fdm s&nbsp;prosbami o motlitbu, porod se rozb\u00edh\u00e1.<\/div>\n<div><\/div>\n<div><img decoding=\"async\" src=\"https:\/\/popelky.cz\/verze7-0\/text_img\/3619NmZ.jpg\" alt=\"dite2\" \/>T\u011b\u017eko se v&nbsp;porodn\u00edch bolestech budete bavit s&nbsp;l\u00e9ka\u0159em o tom, do jak\u00e9 m\u00edry resuscitovat va\u0161e d\u00edt\u011b, \u010di jak bude pravd\u011bpodobn\u011b vypadat a slova l\u00e9ka\u0159e \u201ebudeme respektovat va\u0161e jak\u00e9koliv p\u0159\u00e1n\u00ed\u201c na sebe vz\u00edt jako hladivou deku v&nbsp;tam bolestiv\u00e9m z\u00e1\u017eitku.<\/div>\n<div><em>\u0160\u00e1rka to dok\u00e1zala.<\/em><\/div>\n<div><\/div>\n<div><strong><em>Ano, \u017eena, na kter\u00e9 je ve\u0161ker\u00e1 t\u00edha v&nbsp;tuto chv\u00edli, mus\u00ed sv\u016fj \u00fad\u011bl n\u00e9st jako ten siln\u011bj\u0161\u00ed z&nbsp;p\u00e1ru.<\/em><\/strong> A porodem to nekon\u010d\u00ed. Juli\u00e1nka se rod\u00ed t\u00e9m\u011b\u0159 jako norm\u00e1ln\u00ed d\u00edt\u011b, krom\u011b roz\u0161t\u011bpu rtu. L\u00e9ka\u0159 pak upozor\u0148uje na dal\u0161\u00ed zjevn\u00e9 odchylky od norm\u00e1lu, ale to jsou v\u011bci, kter\u00e9 b\u011b\u017en\u00fd rodi\u010d nevn\u00edm\u00e1. Zat\u00edm. Ostatn\u00ed vady jsou zat\u00edm skryt\u00e9.<\/div>\n<div><\/div>\n<div><strong>A Juli\u00e1nka se s&nbsp;kamerou za z\u00e1dy poprv\u00e9 d\u00edvala po sv\u011bt\u011b<\/strong>.<\/div>\n<div><em>&#8222;P\u011bkn\u00e1 hol\u010di\u010dka&#8220;, <\/em>dle slov porodn\u00ed asistentky, kter\u00e1 ale ani tak neum\u00ed pln\u011b skr\u00fdt smutek z&nbsp;toho, \u017ee diagn\u00f3za se potvrdila. <strong><em>V tom smutku je v\u0161ak slovy nepopsateln\u00e9 dojet\u00ed.<\/em><\/strong><\/div>\n<div><\/div>\n<div><strong>Prostor pro z\u00e1zrak<\/strong><\/div>\n<div>Mo\u017en\u00e1. Nebo zcela ur\u010dit\u011b. V\u011bt\u0161ina d\u011bt\u00ed um\u00edr\u00e1 a \u0160\u00e1rka si tak p\u0159\u00e1la, aby se prenat\u00e1ln\u00ed diagn\u00f3za nepotvrdila, \u017ee j\u00ed B\u016fh daroval Juli\u00e1nce maxim\u00e1ln\u00ed mo\u017en\u00e9 zdrav\u00ed.<\/div>\n<div>A to i p\u0159es srde\u010dn\u00ed vadu, kter\u00e1 je neoperovateln\u00e1.<\/div>\n<div>Projdete se \u0160\u00e1rkou a Marcelem pobytem na novorozeneck\u00e9m odd\u011blen\u00ed, budete bojovat prvn\u00ed dny doma, zajdete k&nbsp;d\u011btsk\u00e9 l\u00e9ka\u0159ce do poradny a Juli\u00e1nku tak\u00e9 pok\u0159t\u00edte.<\/div>\n<div>\u0160\u00e1rka bojuje s&nbsp;krmen\u00edm sondou, s&nbsp;Vojtovou metodou a p\u0159izn\u00e1v\u00e1 psychickou \u00fanavu. Kr\u00e1sn\u00e9 l\u00e9to na chalup\u011b j\u00ed dod\u00e1v\u00e1 sil.<\/div>\n<div><\/div>\n<div><strong>Po dvou letech se k&nbsp;nim op\u011bt vrac\u00edme<\/strong><\/div>\n<div>Pokroky jsou u Juli\u00e1nky mal\u00e9, ale je z\u0159ejm\u00e9, \u017ee se stal z\u00e1zrak. Proto\u017ee se je\u0161t\u011b st\u00e1le raduje ze \u017eivota. Dvoulet\u00e9 miminko na \u0160\u00e1r\u010din\u011b kl\u00edn\u011b ale nen\u00ed samo. Je v&nbsp;\u0161est\u00e9m m\u011bs\u00edci a o\u010dek\u00e1v\u00e1 narozen\u00ed druh\u00e9ho d\u00edt\u011bte.<\/div>\n<div><\/div>\n<div>&nbsp;Marcel zm\u011bnil pr\u00e1ci a pracuje nyn\u00ed v&nbsp;divadle. \u010casto nen\u00ed doma a na \u0160\u00e1rce je zn\u00e1t \u00fanava a pochyby, je-li nutn\u00e9, aby man\u017eel byl st\u00e1le v pr\u00e1ci&#8230;<\/div>\n<div><strong>Jak n\u00e1ro\u010dn\u00e9 dva roky za sebou ti dva maj\u00ed a jak t\u011b\u017ekou zkou\u0161kou musela proj\u00edt jejich l\u00e1ska?<\/strong><\/div>\n<div><em>TO je ot\u00e1zka, kterou jsem si polo\u017eila rad\u011bji je\u0161t\u011b p\u0159edt\u00edm, ne\u017e mi v&nbsp;hlav\u011b vytanuly ot\u00e1zky, kter\u00e9 jsou odrazem krut\u00e9 reality. Ch\u00e1pala jsem tat\u00ednkovu touhu unikat (do pr\u00e1ce) a mamin\u010dinu \u00fanavu a frustraci.<\/em><\/div>\n<div><em>P\u0159esto tihle dva k sob\u011b cestu neztr\u00e1c\u00ed&#8230;<\/em><\/div>\n<div>Kolik p\u00e1r\u016f by asi podobn\u011b posti\u017een\u00e9 d\u00edt\u011b rozd\u011blilo?<\/div>\n<div><\/div>\n<div>Dokument\u00e1rn\u00ed film Zachra\u0148te Edwardse vznikl v&nbsp;koprodukci \u010cesk\u00e9 televize a HBO a vy si ho m\u016f\u017eete st\u00e1hnout z&nbsp;webu Ulo\u017e to.cz<\/div>\n<div><\/div>\n<div><a href=\"http:\/\/www.ulozto.cz\/10628123\/zachrante-edwardse-mpg\">http:\/\/www.ulozto.cz\/10628123\/zachrante-edwardse-mpg<\/a><\/div>\n<div><\/div>\n<div><\/div>\n<div><\/div>\n<div><a href=\"http:\/\/www.youtube.com\/watch?v=IwvwvRDQ56w&amp;feature=player_embedded\"> <object data=\"http:\/\/www.youtube.com\/v\/IwvwvRDQ56w&amp;feature\" type=\"application\/x-shockwave-flash\" width=\"425\" height=\"350\" data-mce-fragment=\"1\"><\/object> <\/a><\/div>\n<div><\/div>\n<div><em><strong>UPOUT\u00c1VKA K FILMU.<\/strong> PO shl\u00e9dnut\u00ed se v\u00e1m rozbal\u00ed bezpo\u010det rodinn\u00fdch vide\u00ed\u2026<\/em><\/div>\n<div><\/div>\n<div>M\u00e1te-li chv\u00edli \u010das, m\u00e1te-li chu\u0165 a chcete-li na\u010derpat \u017eivotn\u00ed pokoru od obdivuhodn\u00e9ho p\u00e1ru, pak v\u0159ele doporu\u010duju.<\/div>\n<div><em>Foto: ilustra\u010dn\u00ed, z arch\u00edvu autorky \ud83d\ude09 Juli\u00e1nku uvid\u00edte na videu&#8230;<\/em><\/div>\n<div><em>Renata<\/em><\/div\n\n\n<hr>\n<p>[sexy_author_bio]<\/p>\n<hr>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Views: 116 Mlad\u00fd p\u00e1r se t\u011b\u0161\u00ed na miminko. Ale dozv\u00eddaj\u00ed se, \u017ee d\u00edt\u011b trp\u00ed chromozon\u00e1ln\u00ed odchylkou \u2013 Edwards\u016fv syndrom. Tyto d\u011bti jen vz\u00e1cn\u011b po narozen\u00ed p\u0159e\u017e\u00edvaj\u00ed. Maminka \u0160\u00e1rka se rozhoduje, \u017ee si d\u00edt\u011b ponech\u00e1. Strastipln\u00e1 cesta k&nbsp;z\u00e1zraku? Ur\u010dit\u011b. Ale v&nbsp;dokumentu uvid\u00edte i t\u00edhu, kterou sebou tento z\u00e1zrak nese. Neskute\u010dnou t\u00edhu. Edwards\u016fv syndrom \u2013 druh\u00e1 nej\u010dast\u011bj\u0161\u00ed [&hellip;]<\/p>\n","protected":false},"author":9,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[21],"tags":[],"class_list":["post-6451","post","type-post","status-publish","format-standard","hentry","category-rodina-a-drobotina"],"aioseo_notices":[],"aioseo_head":"\n\t\t<!-- All in One SEO 5.0.3 - aioseo.com -->\n\t<meta name=\"description\" content=\"Mlad\u00fd p\u00e1r se t\u011b\u0161\u00ed na miminko. Ale dozv\u00eddaj\u00ed se, \u017ee d\u00edt\u011b trp\u00ed chromozon\u00e1ln\u00ed odchylkou \u2013 Edwards\u016fv syndrom. Tyto d\u011bti jen vz\u00e1cn\u011b po narozen\u00ed p\u0159e\u017e\u00edvaj\u00ed. Maminka \u0160\u00e1rka se rozhoduje, \u017ee si d\u00edt\u011b ponech\u00e1. Strastipln\u00e1 cesta k z\u00e1zraku? Ur\u010dit\u011b. 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